Tuesday, October 16, 2012

Teenie Weenie

Phillipians 4:6
Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God.

At 9 months, my child was still teenie weenie. He had fallen off the growth chart and remained below the 0% percentile since leaving the hospital at 4 months.
Ahhh!!  C'mon Noah gain some weight.
Meanwhile, the monthly visits continued and so did the lab testing.

The Genetecist is still confused about him having a genetic problem.
Ahhh!! Thats getting old and annoying. Stop making us wait in your lobby for 3 hrs and saying the same thing please!

The excessive puking continued until Noah was 10 months which only added to his malnourishmet. He continues eating tiny amounts and depends on g-tube for his feedings.

Prayers continue...

I want to be a normal mom! I want to enjoy the normal things in a baby's life not worry about gtubes, medications, special formulas, lab testing, continuous feedings, 6 different Dr.s who dont always agree. I want to go on a date with my husband! I want to step out without fearing that I've left medication, mickeys, or syringes behind on top of all the crap I already need. I want to live a life of normalcy where a child's skipped meal isn't much to worry  about or special instructions on how to feed your child is necessary. I want a day where my day isn't planned around my child's meds schedule. Father I pray for complete restoration in Noah's body in the name of Jesus!

He was finally able to  tolerate his night feedings without waking up in the middle of the night throwing up at 10 months. I could pump the milk in his stomach while he was awake and he no longer vomited. On occassion, there was some spit up but no more VOMITING.

~WOW~




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