Noah Ezekiel

 
Psalm 139:13-14For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.

My precious one..
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Born at 35 weeks weighing 6 lbs 5 oz.
Noah Ezekiel ,our gift from heaven, has given us so much, made us feel so much and at the same token worried us so much. Our Noah was born with one kidney. That one kidney he has was not doing so well from the start. When he was born, he had hydronephrosis grade V( swelling of the kidney ) and reflux V (urine going back into the kidney). Both of these were the worst they could be. He was diagnosed with kidney failure at the young age of 2 days old. Our nightmares began shortly after.

I remember being terrified of taking my little one home. How could I hold and love this one baby that might be taken from me? I am ashamed of my fears now. But, they were real.

We visited urologist a day after being released from the hospital.
Urologist agreed with Dr.'s previous diagnosis. His kidney is not looking good. His blood pressure is high. He requested an ultrasound and a VCUG (Voiding Cysto-Urethrogram) .

Tears rolled down my eyes. My perfect baby came with so many imperfections.:(


Day 7 -first visit to his pediatrician. More bad news. His 1st heel test came back abnormal. Further testing is needed.

Day 8- Pediatrician requests labs. 2nd heel test is abnormal as well; a trip to the Geneticist is required.

Day 18-Visit to nephrologist; she states, ""He will never outgrow this; he will need surgery to help with reflux, dialysis, and eventually kidney transplant...1 every 10 yrs".

Day 28- VCUG is needed for a second opinion on the severity of the reflux. After an hour of torture a busted vein and so many screams from my Noah, they are able to determine that reflux is definately grade V.
Day 30- first visit to Geneticist. The doctor states he might have organic acid disorder.
More poking!!